Sam's Hearing Life July 1, 2008 May 2008 - I DID IT! Going through memory lane of my high school years… 9th Grade – I was struggling in school trying to keep my grades at least a B+ while my hearing continued getting worse to where I was missing a lot and my speech discrimination was decreasing. I tired everal different hearing aids maxing out the settings and volumes realizing that hearing aids really weren’t helping me. I was not really involved with school clubs and pretty much stayed to myself. --Summer-– I got the Cochlear Implant. 10th Grade – I had to relearn sounds all over again and get used to life with the Cochlear Implant - 8 hour batteries, no leaning up against the fridge or the car, dealing with hearing my dogs licking themselves all the time, etc. My grades in school were getting better and I was starting to become more confident with my hearing and slowly tarted getting more involved with clubs. --Summer-- VolunTEEN for the first time in the OR at the Children’s Hospital. 11th Grade - I got the new Harmony Cochlear Implant. I was hearing great and loved being able to hear and talk to my friends. I made traight A’s in school and became really involved with clubs and planning Prom and Homecoming events. Started taking the SAT and ACT’s getting ready for college. --Summer–- VolunTEEN again in the OR at the Children’s Hospital. Got asked out for the first time and became obsessed with Swing Dancing. 12th Grade - Still hearing great, making straight A’s in school, taying involved with clubs and Swing Dancing all the time. I got accepted to my dream college (Berry College) getting amazing cholarships for my hearing and academics. ---MAY 24, 2008 – I GRADUATED FROM HIGH SCHOOL --- My Grandparents and me by my graduation sign! My parents and me My brother, Jonathan, and me (he was ushering with the ROTC at my Graduation) Me with some friends after Graduation Now, as you can probably tell, before I got the Implant my life was pretty boring and I was a bit more kept to myself because I wasn’t hearing that great and I didn’t have much confidence in myself because of my hearing. I was too scared to get involved because I was too afraid I couldn’t hear anyone or that they would laugh at me because I couldn’t hear or understand what everyone was saying. But once I got the implant, my life began to change. I was hearing so much better, I started becoming more confident in myself, became more involved with clubs and Swing Dancing, started dating, my grades got better, and I was happier about myself and my life. And now, in about 7 weeks I’m moving out into my dorm on campus and I get to enjoy the next 4 years of College. Only now… I can’t wait to get involved and to meet new people. :) Posted by Samantha Brilling 3 comments: April 29, 2008 Senior Prom! Hey Everyone! Well, nothing much going on here... just ready for the last few weeks of school to be over. I believe there are about 16 more days left for Seniors! YAY! :D We had our Prom last weekend - it was a lot of fun!! I went with my brother and a group of friends which was pretty cool. We had dinner at a Japanese Habatchi (sp?) Steakhouse, that was neat seeing the chef cook the meal in front of us as he entertained us with his skills. Then we went to Prom - we were basically out on the dance floor the whole entire time just dancing and having a great time. During Prom they had the Senior Walk, so all the seniors walked down these stairs and out onto the red carpet and did the Senior Dance. That was pretty neat... especially since I've waited 4 years for that! :) Then after prom my friends and I went bowling in our formals and had an after party at my house. So we just hung out, played games, and watched movies all night long. So here a few pictures to enjoy from my Senior Prom: - My brother and I - - My mom and I - - My friend Li, and I "fighting" over our Date - - Everyone at dinner - - Everyone out on the dance floor - So yeah, that was definitely a night to remember! :) --*--*--*--*--*--*--*--*--*--*--*--*--*--*--*--*--*--*-- You know, recently someone messaged me about the implant and how he couldn't decide on whether to get the implant now or wait another 5 or 10 years until they come out with something even better. But honestly, it really annoys me when people think like that... sure, there will be many advances in technology in the future. But when it comes to hearing the world - why wait? I can't imagine all the things I'd be missing out on over the next 5 years just waiting for better technology to come out. Besides, Advanced Bionics is inventing better technology and coming out with newer upgrades BUT they are keeping the internal piece the same so people can upgrade their implants for the newer style. Like with me, I was implanted the Auria. But becuase they invented the new processor (keeping the internal piece the same) I was able to upgrade to the new Harmony. So why miss out on all the things you could be hearing now just to see if there will be something better coming out in the future. I rather live for today then to just sit around and miss out... Posted by Samantha Brilling 4 comments: March 10, 2008 Berry Bound... 6 more months :) Alright, so there's been a change of plans.... instead of going to NGCSU, I'm going to BERRY COLLEGE! I got some amazing scholarships to go there and now my dream has come true. It's been my dream school ever ince I was a little girl, but thanks to the scholarships - it's going to happen! :) The Girl Dorms - Where I'll be staying next year. Now I have a choice of having a private room or having a roomate... which do you think is better?! The famous mill on campus... Another part of Clara Hall (the dorms where I'll be staying)... But yeah, I'm really excited!! I'm going to be majoring in Marketing in the Business department. I've sat in some of the classes and it was so much fun! We had a group discusion about McDonalds and how they market and franchise their company all over the world. I also got to hear about the project they're going to be working on right now - I almost wish I could do it now!! :) I don't think I've ever been so excited about taking a class... and sadly I have to wait two years before I get to start on my "major" courses. lol So now, only about six more months till I'm college bound! YAY! :) January 21, 2008 CI users in risk?! (please note, this could be offensive to some... and I'm sorry if it is...) My mom forwarded this quote to me from a "Deaf Blog" and it literally cracked me up and puzzled me why people would even think like that. But here is the quote and maybe you'll laugh at it too... "Look forward to the studies of long-term consequences of CI users, especially emotional and congential development. Let's imagine that one of the country or terrorist group use the electronic magnetic pulses (EMP) weapons to attack the civilian population. The CI users will be mostly vulnerable to the EMP attacks as compared to deaf individuals without CI devices inside themselves. Or the CI users walk accidently past the huge microwaved area, ex. corporate research military base. Their heads surely will explode or fried. Culturally deaf people will apply their savvy.natural insticts to respond to any arising situation much better than individuals with CI. Real freedom from the technopoly or enslave by the artificial intelligence/technology." And now, apparently she is going to have her implant removed because of this... : / First of all... if you are near anything that has a magnetic field such as the MRI or some rollar coasters/theme park rides - there will always be a sign that says its a magnetic field so beware... thats your cue to not go there. And second of all - I would personally rather put myself in risk for the future "magnetic pulses (EMP) weapons" (if there is such a thing) then to not hear anything at all right now. I can't imagine all the things I would be missing out on if I thought about ALL the little crazy risks/consequences of getting it. Its like saying - we are in risk everyday for driving on the streets becuase there are so many DUI and crazy people driving.... so I'm not going to drive my car anymore...I'll just walk. lol I don't mean to sound sassy about it (so I'm sorry if I have offended anyone by this post)... but it just bugs me that people would give up the chance to hear EVERYTHING over a SMALL risk that would probably never ever happen : / January 8, 2008 Update on my Grandpa! Hey Everyone! Sorry about the late update - time flies by way to fast! But I just wanted to tell you a little bit of whats going on... (this is based on my understanding of what he's going through from what he's told me) He got turned on a few weeks ago and he's already doing great and making progress! At first he went through the normal phases of beeps and robotic voices. When he first got turned on he didn't like it much and after a few days it still sounded scratchy but he DID like it better then what he had before. He said he could understand a little bit better then when he had two hearing aids so he continued to work with the implant to help make it better. My grandmother and aunt both work with him on therapy at home everyday training his brain to relearn and understand the sounds of the environment and of people's voices. Can you believe at 85 years old, he's learning to hear all over again?! :) Some of the sounds he's heard so far: - air conditioning - dish washer - family members talking with pretty much all understanding - watched the news and got all of what they were saying - recognized an Elvis song in the background of a movie playing - the president's debate on the TV without closed captians He's still learning to cope with the implant and trying to figure out which hook he likes best, which programs to use, how to wear his hats with the implant, how to keep the implant on with the oxygen tube and glasses, etc. He's been having difficulty with keeping the implant on with the tubing for his oxygen and glasses becuase they all hook on to his ears. At first it was a mess but he's gotten used to it and has learned to keep it all on. :P But as of right now, he's understanding pretty good and is progressing really well! He can communicate with us again and we don't have to keep repeating everything we say and deal with him yelling anymore! His voice has gotten softer and its great having our grandpa back! :) He's still having a hard time with distance becuase it's only been a month but over all he's doing great! He's also having a great time telling all of his friends at his complex about his experiences and everything that he's going through. And of course, everyone is just AMAZED with the Cochlear Implant and wishes they could get one! :) Here are some pictures of him and the implant... He's been to 2 mappings so far and is continueing to progress really well! :) We're all very happy for him!! Posted by Samantha Brilling 2 comments: November 12, 2007 The CI runs in the family... My Grandpa got the Advanced Bionics Cochlear Implant last Wednesday! He got the new Harmony and we are all waiting anxiously for the turn on date which is in about 3 weeks! But until then, he's getting his taples out this Thursday and he's going to have to just deal with "hearing" out of one hearing aid. Here are some of the pictures from the surgery.... My Grandpa Sam Rivituso and my Grandmother Pauline - shortly after recovery My Granpa with his nurse Katherine... she was really nice Me, my Grandpa, and my brother leaving the hospital The scar from when we took off the bandage.... it looked good! (the black line is his glasses, just to let you know lol) As you can tell from the pictures, we were ALL very EXCITED about him getting the implant! Before, he couldn't hear anything and it was getting very difficult when we tried to talk to him. So we're hoping that after a few weeks he's going to be able to hear again and we can all talk to my grandpa normal again! :) Congratulations Papa, you finally got the implant!! :) Now we have three people in the family that has the implant (me, my brother and my grandpa)... and hoepfully my dad will be getting one oon (he's a bit stubborn when it comes to his hearing).... Posted by Samantha Brilling 6 comments: November 1, 2007 Can you hear me now?! It always cracks me up whenever I take off my implant to show my hearing friends and they try to put it on to see if they can hear from it or sometimes they try to speak into the mic to see if I can still hear them! But I have to explain to them that that's not how it works. lol It has to be connected to the magnet in my head...and they always get this confused look on their face... its so funny! :P It reminds me of the guy from the Verizon commercials - "Can you hear me now... how about now?!" And also, when I'm in class and we're all listening to our ipods. I'd be jamming out to my favorite songs and some of my classmates would ask to hear what I'm listening to so I would hand them my direct connect cord and they always get this confused terrified look on their face! They're like "what the heck is that?!" lol And I tell them that its my "headphone set" and they try to stick it in their ear to try to hear from it!!! But then I show them how it connects to my implant and you can see a light bulb pop up above their head!! :P I love doing that to my friends.... it cracks me up! :) Only AWESOME people get to hear out of the Cochlear Implants!! hehe :D Posted by Samantha Brilling 1 comment: September 25, 2007 BUSY BUSY BUSY! But life is going pretty good! My senior year has been great so far - I have straight A's and I'm enjoying my classes so much this year! I've been so busy lately between clubs, sports, applying to colleges, SATs, ACTs, and what-not. My best friend, Zoe, and I go to the school football games every friday and we till go swing dancing on the weekends. Last Saturday we got tickets to the Thrashers Hockey Game - which was awesome!! I love hockey!! :D This week is also Homecoming at our school so this week has been crazy with getting ready for that! Our game is Friday night and then the dance is Saturday night! YAY! I'm so excited!! :) My brother is also doing good - he's enjoying his sophomore year. His implant is doing really good too - he had a rough start from the new implant but now he's understanding really well and calls me on the phone like all the time! :) So that definitly shows he's improving!! He's also gotten really big in ROTC. Him and his friend, Colton, are actually going to be performing an Armed Expidition Routine (sp??) for the Drill Team Competition in the spring! And in case if you don't know what that is... its when a team of ROTC boys (in this case 2 boys) do a routine with different calls and steps with the "gun" and spinning it around and doing all these tricks with it. So it should be pretty awesome to see him out there!! :) He's also playing second base man for the ROTC softball team! His tournament is in like 2 weeks! GO JONATHAN!!! So I'm in the process of applying to colleges. I've narrowed it down to my top three which are North Georgia College and State University (NGCSU), Berry College, and Georgia College and State University (GCSU). I've had my senior meeting with my counselor which was pretty exciting talking about colleges and life after high school and graduation! I was pretty excited about that meeting but my mom was pretty sad! haha :) So I've been writing my essays for the colleges and I thought I'd post one up here and see what yall think! Here is one of my essays: Topic for Freshman Essay: “As a part of our mission to provide students with a liberal arts education, Georgia College & State University strives to create an atmosphere that instills in students exceptional qualities of mind and character including respect for human diversity and individuality. Given your own individual background, life experiences, and personal identity, how will you contribute to the overall diversity of the tudent body at GCSU?” College Essay Rough Draft: No matter who we are, where we’re from, or what our backgrounds are, we all come together to achieve one common goal: a goal of overcoming all obstacles and achieving success. In achieving our goal, we must all work together bringing diversity with different backgrounds and points of view about life, to achieve success and to make a difference. With my background of being born with a disability, a passion of helping or mentoring others and the motivation of being an active member in my ociety will help bring diversity to the student body of Georgia College and State University (GCSU). Over the years, I’ve had to overcome my disability of being hearing impaired. I was born profoundly deaf and went through Auditory-Verbal Therapy to learn how to hear and speak and to become an independent communicator without the use of sign language and lip reading. My journey wasn’t over with just hearing aids and years of therapy. In 2005, my hearing started to deteriorate and I went through major urgery to get a Cochlear Implant. The cochlear implant is like a more “high-tech implantable hearing aid” which helps me to hear even better. But along with getting the new cochlear implant, I had to relearn ounds all over again while I was still going to high school, making good grades, and continuing to be an active member in various clubs. After going through a major surgery, I realized I could help others who are going through the same situations. So I decided to work in the Operating room as a “VolunTEEN” at the Atlanta Children’s Hospital, which I have done for several years. Working there allowed me to help other families deal with emotions that come with having their child go through a major surgery. Even though I volunteered my free time at the Children’s Hospital, I also kept an updated online Blogspot journal (www.samshearinglife.blogspot.com), entitled “Sam’s Hearing Life.” I posted about my experiences while going through surgery and about the process of relearning sounds all over again. This was designed to help mentor other families who are in the same situation as I was, who also choose to become independent communicators me. During my high school years, I realized that it’s important to not only maintain a good grade point average but to also be an active member in clubs that support community service, such as Key Club and Girl Scouts. As a member I help make my community a better place by cleaning local parks to make it fun and safe for neighborhood children, package up food with Project Open Hands for AIDS victims, and I also help clean local pet shelters such as Paws Atlanta. I also use my leadership kills, organizational skills and creativity to help with school committees such as Homecoming and Prom. I believe what makes a unique college experience is one with a diverse group of people and backgrounds who all come together to achieve uccess by working together and helping others. And because of my well rounded background and desire to overcome my disability, I believe I can adjust to any environment, such as GCSU. I would come with enthusiasm and dedication to be able to excel academically as well as to share my experiences to help others overcome their struggles from dealing with a new environment, challenging personalities, and a new way of life away from the comforts of home. I also believe that my passion for helping others and being involved will allow me to continue to be involved with new community service clubs, such as Circle K, to make GCSU and Milledgeville a better place and to be able to call it my new home. So I hope for the best and just wait and see what the colleges say!! Gosh the wating part is the worst part ever!! eeeeek! But yeah.... I don't know what else to say at this point. Jonathan and I are both doing great in school, clubs, and with our implants. This year, Jonathan and I are also actually officers for Key Club which is pretty fun becuase it makes us look important! He's 10th grade representative and I'm Bulliten Editor. :) Oh by the way - Jonathan also just got his liscense this weekend and he's going to get his motorcycle permit this weekend! YIKES! So he's pretty excited about being able to drive...but one thing he's going to have to remember - the second car is MY CAR and I GET PRIORITY!!! hehe :D Here are some updated pictures of us... Me, My Mom, and my Brother at a Kareokee party with some family friends!! :) Me and my best friend Zoe going to the Tucker Football game! YAY! Jonathan and I when we went hiking in North Carolina - SO BEAUTIFUL THERE!!! :D My Senior Graduation Picture :D Posted by Samantha Brilling 9 comments: August 11, 2007 Spreading the word around... Just in case you didn't notice...I posted up some links on the right ide on my website. One is for the Auditory Verbal Center, Inc. Thats the center that taught me to hear and speak. The next one is the homepage for Advanced Bionics, the implant company that I have (and ABSOLUTLY LOVE!). And the others are friends with Cochlear Implants and AVC graduates from the center I graduated from. They vary in ages, so you get a wide variety of points of views and lifestyles with the Cochlear Implants. But they're all really good, so if you're interested...check them out too and see what they have to say! : ) Just thought I'd point that out for those curious minds out there... August 9, 2007 Who's ready for Senior Year?!?! I AM! I AM! I AM! I AM! I AM! I AM! : ) Yesterday we had registration at school...that was pretty much really hectic! The only awesome thing about registration yesterday was tanding in the SENIOR LINE!!! haha I was so excited!! :D I also got to ee some old friends that I havn't seen all summer and my teachers from last year!! That was pretty fun! But today I had to go back beacuse I had an appointment with my new counselor to talk about my schedule, introduce myself, explain my hearing, and what-not. And of course my mom told him my awesome story with the implant and how I was born deaf and how I can now hear and peak...and of course he was just blown away and couldn't believe that my brother and I were born deaf! haha Its amazing how people's face expressions change once you tell them that you're deaf!! haha : ) So here are my classes for next year... 1. AP Microeconomics 2. Environmental Science 3. British Literature 4. Algebra III 5. Banking/ Finance 6. Bussiness Document Processing 7. Introduction to Technology I'm looking forward to my classes this year....the courses seem like they may be a little challenging but for some reason I'm excited! So we'll see when I start next Monday! But you know what else?! Today, I also got my first Parking spot at Lakeside!!! I was soo excited!! I didn't get one last year (even though I could have) but I got one for this year!! YAY! I got a little sticker to put on my back window and we went out to find the spot...and lucky me, my spot is one of the few that were in the hade!! YAY! YAY! Heres a picture of me in my parking spot...can you tell I was excited?! haha :D So yeah, this year should be a pretty intersting year! I'm a senior and my brother is a Sophomore!! I can't wait till football time starts! Then HOMECOMING! My favorite part of the year!! haha Posted by Samantha Brilling No comments: August 5, 2007 We LOVE our Direct Connect! Hey - Just thought you might enjoy a picture of the implant with the direct connet. We went hiking this weekend in North Carolina and so my brother and I both took our ipods to listen to in the car. And lets just say, now that my brother got the new harmony - he has become OBSESSED with the new direct connect!! haha So now both my brother and I won't go anywhere without it!! haha : ) Here is a picture of my brother with his implant and the direct connect attacted to it. For those of you who don't know - the direct connect is like a headphone set for the Advanced Bionics users. Its the black cord that hangs down from the front of the implant that connects to the ipod or to whatever you're listening to (cell phone, ipod, computer, mp3 player, etc.)... And just another thing to notice...my brother got his implant about a month and a half ago and his hair and skin is already back to normal! I know there are alot of parents out there that are worried about what their kids are going to look like afterwards and scared about the whole hair thing...but his hair grew back, you can't really see the scar, and he's already had a hair cut since after the surgery. So your hair will grow back and it'll go back to normal!! Just another note for those worried parents... : ) August 1, 2007 VolunTEEN at the Children's Hospital My last day as a VolunTEEN at the children's Hospital was today! :( I could only do it for the summer, and becuase of school starting in two weeks, today was the last day for us. I got to work in the Operating Room with my friend Sumon. We had fun helping all the nurses, watching the different surgeries, helping the hospital move into the new building (which was so confusing lol), and learning about what its like to be a nurse at the hospital! My favorite part was seeing all the surgeries - I got to see intestines, the inside of a stomach, lungs, and a heart! Who knows, maybe I'll become a nurse working in the OR one day... :) Here's a picture with me and the people I worked with in our lovely crubs... Sumon, Elizabeth, Mrs. June (the lady in charge of us) and then me... July 30, 2007 An Emotional Summer... So much has happened this summer - I don’t know where to start! Well...in May of this year, I got my new harmony! I was so excited!! : ) I went to go get it mapped and had my programs set to: P1 – 120 – 60 IDR P2 – Hi Res – 60 IDR P3 – 120 – 80 IDR But being that I don’t like to change my programs through out the day, I tend to just stay on program 3. I can’t tell a difference from the Auria and the New Harmony when I’m just talking to people and when I’m in my normal environments. But when I’m listening to music…I can see the changes. I’ve been able to hear the words to the songs better, I’ve also been able to get more of the instruments from the background too! There have been a couple songs that I liked before I got the Harmony, but never really understood the words and what the song was about…but once I listened to it with the Harmony, I understood the words and finally got the meaning of the whole song! And now its one of my favorites! : ) Its so weird to hear different songs on the radio and compare it to what it used to sound like and to what it sounds like now! Some of them have been good changes, but then again, some of them have been kind of wierd...like this one time - I listened to this one song that I liked before and I listened to it with the Harmony and heard what it REALLY sounded like! And with the Harmony, it sounded sooo wierd and different! It sounded anymore! haha But for most of the songs...they sound so much better! So thats a good thing! : ) But yeah, I really like the Harmony, not only because of the more channels and how the music sounds… but also because of the battery life! The battery life is TRULY AMAZING!! AND SUCH A LIFE-SAVER!! For me, I was lucky because with the Auria I only had to change my battery twice a day….but even still, I always had to worry about my batteries charging at night, making sure I had my batteries with me and what-not. But now, I just use the one on my implant and I’m good for the WHOLE DAY! I still carry one battery with me as an emergency backup if I need it, but honestly I don’t even need to carry an extra battery with me! The one battery lasts all day long and I absolutely LOVE it!! : ) So everything is going great with me….but unfortunately this summer and been a rough few months for my younger brother, Jonathan (16). At the end of May, his C1 internal implant (after 9 ½ years of having it) failed. So after the “confirmation” of the device failure he went into urgery to get the new Harmony. Lucky for him, the doctor was able to just take out the old one and put the new one right in the same spot on the same side. We were really happy about that because we both want to keep the other ear open for down-the-road emergencies and for the more advanced technologies that are coming out. So then after the surgery he waited a few weeks to get turned on. Those few weeks were probably the toughest weeks we all had to go through! He doesn’t lip read or use ign language (because we went through Auditory Verbal therapy to learn to hear and speak) so basically we had to walk around with a pen and paper so we could even communicate with him and to tell him what’s going on! I don't think I've ever seen my brother so depressed and bored! We were also all really nervous about the whole thing because we weren’t sure how this was going to turn out. We didn’t know if he was going to like it, if it was going to even work, or if he’s going to have to relearn the sounds all over again. But then the turning on day came… and it worked! But as it turns out, it did start off to be beeps and it moved into the “robotic” sounds and now it sounds like normal people. Its been about 2 months and he’s now hearing fine! I think because he had the implant for the last 9 ½ years in the same ear, the process of understanding with the new one was quicker and easier for him then for someone just getting it for the first time. But after this rough and emotional summer, he’s now really liking the implant and seems to be hearing great! He wears the new color caps, loves the direct-connect to listen to his ipod with, and most of all… he loves the battery life! With the C1, he had to go through 6-8 batteries A DAY and now he only uses one battery for the whole day! So now, that my brother and I both have the new harmony we have fun with sharing the new color caps and jazzing up our implants! Now, we're both stylish AB Harmony Implant users!! haha : ) Here is a picture of me and Jonathan swing dancing at a local concert a few days ago.... But on the flip side...even though this summer has been really emotional and crazy for us, we still had a great summer! This summer, I worked in the Operating Room at the Children's Hospital again and I absolutly love it there! I went to Texas for 2 weeks and cruised around San Antonio with my Mom. And I've also been working at AVC and hanging out with all my friends. And for Jonathan - for the last five weeks he went to the Riverside Military Academy to take Algebra II and to see whats its like to be in the military. Now, you're probably confused and wondering why he went off to the military academy when he JUST got the implant... well he actually signed up before the imlant failed and nothing was going to top him from going (even the implant failure). And much to our urprise, the teachers and sargents were all really cool with him about the implant and really worked with him! He took a whole years-worth of Algebra II in 5 weeks ( and PASSED) and had a great time playing sports and working out with all the other guys! Here is a picture of Jonathan and me from the Military Ball (you can kind of see him in his uniform)... So yeah, you never know what life is going to bring you.... : ) May 11, 2007 FINALLY! ...an update! : ) Wow, I haven’t posted in while! YIKES! I’m sorry…I keep forgetting to post! : / But yeah, things are going good. Last week I went to get remapped because I felt like I was loosing most of what people are saying. So we changed my settings and put my implant in the cleaner (wow-that cleaner thing really makes a difference! lol). So right now my settings are set the following: program 3 – 50 - quite environment program 2 – 60 - noisy program 1 – 80 - cafeteria or very noisy environment She set me on these settings because it’s supposed to help me hear better when I’m driving in a car, listening to music, and eating in the cafeteria or a restaurant. So my homework was to experiment with the different programs and see if it helps make a difference. And right now, I’m in the process of doing that. Although I gotta say, I hate changing the programs throughout the day because for some reason it takes so long for the implant to switch over. And by the time I witch over, I’ve already missed a lot. But I think that that’s omething that will get better with more practice on switching BEFORE I get there! : / But I’m working on it… But other then that, the new mapping seems to work good…it’s defiantly better then what I had! Oh, the other day I also put an order in for my NEW HARMONY! YAY! Thanks to my mom for helping me get that, maybe now I’ll be able to HEAR EVEN MORE! Now, I’m not even sure if I should be happy or a little nervous! Because quite honestly, it gets kind of annoying to hear my dog lick herself while we’re watching TV! Haha, just kidding…I’m looking forward to it! : ) I should be getting it in the next few weeks, so it should be interesting to see the differences between the Auria and Harmony. They say that the Harmony helps make music a lot more clearer – YAY! And being that music is everything to me…I’m looking REALLY forward to that! : ) But other then that, life has been going good! I just turned 18, I went on my first date, I've been to two Proms, I’m touring colleges, and also I’m taking Swing Dance Lessons! My junior year has definitely been the best so far, and it’s all because of my implant! My freshman year ucked because I had hearing aids (Superos by Phonak), and missed A LOT. Then my sophomore year, I was just getting the implant and I was trying to get used to it. And now, it’s the end of my junior year and I’m doing GREAT with hearing everyone and making all A’s and B’s!! I went on my first date a few weeks ago. I was soo excited! Because I didn’t know how people would react to me being deaf and this guy asked me out!! I was honestly really nervous about it because I didn’t know if he knew about my hearing or not. But he was actually pretty cool about it! We went to the park and we were talking and he asked what that thing was on my ear. So I explained it to him and his mouth just dropped! Haha, he couldn’t believe that I was deaf! But he was urprisingly cool with it which made me really happy and a lot more confident about my hearing. And what’s so funny about it all is that he’s actually part deaf too! And I didn’t realize that either! He can’t hear out of his left ear either which was kind of neat to find out! : ) So you never know what you might learn about someone else, huh?!? So yeah – I guess I was just imagining the worst when I thought about telling people about my hearing. People are actually more understanding about your hearing then you realize! And that really makes me happy! : ) I’m also touring colleges right now! I went to tour Georgia College and State University (GC&SU) and I absolutely LOVED that place!! I am looking soooo forward to college, no offense to mom, but I am!! We got to tour the dorms, see the classes, and eat in the cafeteria and what-not. The dorms were pretty cool. It’s more of a quad-suite so I would have a roommate. And hopefully my roommate won’t mind my vibrating alarm clock!! Haha! So yeah, right now that’s my first choice in colleges (go GC&SU!) but I’m also touring some others such as University of West Georgia and Berry College. SO we’ll see… I’m also taking Swing Dance Lessons which is A LOT of fun! My brother is actually my swing dance partner (he also has the implant)! We’re not as good as the dancers on Dancing with the Stars (…not yet at least! hehe) but we’re having fun learning the dance moves and listening to all the jazz and swing dance music! ; ) So yeah, life is going good…I love my implant! I’m definitely enjoying my life a lot more!! I’m making better grades, hearing more things, trying new things such as dance lessons and running for office in clubs, and I’m also getting better at being more vocal about my hearing! : ) February 13, 2007 Survey.... My friend wanted me to answer this survey for her project in college, and I thought it'd be interesting to post on here. I thought they were good questions and I figured they might be helpful to you....so enjoy! 1. What age were you when you received the Implant? I got the implant in april of 2005 when I was just turning 16 years old. 2. Has Getting the implant limited what you can do? Yes, there are some activites that I have to avoid now becuase I have the implant, for example different things with magnetic fiels such as ome rollar coasters, MRI's, and plastic slides. 3. How does the Implant help you with your daily life? The implant helps me to hear no matter where I am, such as the cafeteria, outside, at home, or even on the phone. I wasn't functioning good with two hearing aids, so thats why I got the implant. And now I can hear alot more and its helped me to understand people, music and environmental sounds better. 4. Is it noticeable to other people when you first meet them? No, becuase the cochlear implant is a small device that sits behind my ear. And being that I have longer hair, its hard to see it because its being hid. Plus, people don't "look" for the implant becuase they don't realize that I'm deaf when they meet me because my speech quality is so good. I was taught spoken language through the auditory verbal approach to where I don't lip read or use sign language. 5. How has the implant affected your life? Yes, dramtically. With it my grades have gone up becuase I can hear now, I have been more involved with clubs such as Key Club and Girl Scouts, I have volunteered at differnt places, and I can even get a job now because I can hear what I have to do. And of course music is my favorite thing, now I can really enjoy the music and words. But then again, its also frustrating because I always have to make sure I have charged batteries to get me through the day. Because if my batteries go dead, I can not hear a thing and I'm in a silent world. 6. If you had not gotten the implant how would your life be different? If I had not gotten the implant, I would not have been involved with the clubs, volunteering, and plus I probably wouldn't be at the public chool that I am now. I also wouldn't have been able to do some things uch as going to concerts, movies, and plays. Without the implant, I would have very few friends, I wouldn't be as socialble and I wouldn't be where I am today. But yeah, it was a short survey but it had some interesting points about the implant... December 6, 2006 Interesting Quote... Well the other day I was reading this magazine called "Choices" in interior design. And one of the articles in the magazine was about a hearing loss and all the things you do that makes your hearing worse and all the things you can do to prevent a hearing loss. In one part, it was trying to explain what a hearing loss is like and this is how American Speech-Language Hearing Association (ASHA) put it.... "It's like a dining room chandelier with bulbs that go out. Every day, it dims a little bit until one day you think, 'it's dark in here,' but then its too late to turn the light back on." But anyways, I thought it was pretty funny how they relate deaf people as chandeliers!! : P So my friend and I were joking around with each other about this and teasing me about being a chandelier!! At first I laughed and I couldn't believe that they were saying that but once you think about it...in a way a hearing loss is like dying light bulbs!! But in my case, I got high-tech, life-time guaranteed new light bulbs!! : ) I have my speech which will last a lifetime (thanks to AVC) and my new high-tech Cochlear Implant which will also last me forever!! hehe So now, I am a very bright and shiny chandelier!!!! : ) November 29, 2006 When do Direct Connects come in handy?? Well today, I went on a field trip with my Photography class to the High Museum. That was interesting. But we all had to walk around with recorders and headphones that was talking about all the pictures. I couldn't hear a thing on the head phones so guess what...I pulled out my Direct connect from my purse, plugged it in...and ta-da! I can HEAR!!! YAY! YAY! YAY! haha, who would ever have thought that that was going to come in handy?? I usually use it just to listen to my music on my MP3 player, I never thought I'd need it for something else. So for all of you who have the implant....get the Direct Connect!!! You never know when you'll need it!!! October 24, 2006 Update Well things are going good with me and my Implant. I'm a Junior in High School and school is going great! I'm aceing all of my classes, which is really exciting! YAY! Last week was Homecoming, that was bunches of fun!! Friday night was our homecoming game, my brother and I stood up in the front cheering for the Lakeside Vikings. And believe it or not...we WON!!! YAY! YAY! YAY! That was really really really exciting to win our Homecoming Game!!! : ) Then saturday night, we had our Homecoming Dance. Jonathan (my brother) was my date so we danced and had alot of fun the whole night!!! It was pretty cool to be able to hear the beats and be able to follow along with the music. Oh, the other day my brother and I spoke on a panel in front of a bunch of therapists, parents, and teachers at this Advanced Bionics Meeting. That was pretty interesting....apparently we were really good!! : ) They asked us questions about how we deal with the implant at school, the differences between the Hearing Aid and the Implant, Our favorite and least favorite things about the implant, etc. so I guess that went well. I was glad that we were there to help answer questions! But other than that, everything seems to be going pretty good. August 9, 2006 Last day as a Volunteen!! The other week I had my last day of being a volunteen at Egleston Children's Hospital. I have been working there in the Operating Room every tuesday this summer and it has definatly been the highlight of my ummer! I got to help patients get ready for surgery, get the operating rooms ready for surgery and I also got to help nurses during surgery!! And whats so cool about it is that I got to get all dressed up in crubs, a hat, and a mask! And I still was able to hear everyone!! But there is one thing that my mentor, June Malcolm, and I will always remember! The story when she learned I was hearing impaired. Ok, on the first day of working there, June was giving me a tour around and telling me everything I've got to do, etc. And we come in front of the OR room where Dr. Todd does his implant surgerys. And June was getting ready to tell me this whole "speel" about what the cochelar implant is and what its for. And immediatly I bursted out "I GOT ONE!!". hahaha, I was so excited to be able to see them getting one that I just bursted that out! And the look on June's face will always stick with me! She was so suprised and couldn't believe that I was deaf and I was working in the Operating Room! So then from then on, she told all the nurses and advisers, etc. about my hearing and about our story! And everyone that she told was always shocked and so suprised that I was deaf!! So yeah, I guess you can say....nothing will get in the way of getting what you want!! And I wanted to be a volunteen at Egleston and I got it!! And I had the BEST TIME OF MY LIFE!! This is a picture of June, Me, and Cynthia. Notice the scrubs - don't we look cute!! hehe : ) Posted by Samantha Brilling 5 comments: August 7, 2006 Swimming with friends....finally! I just got back from going to a mountain house with a group of my friends for the weekend. I had an awesome time!! We got to hang out, go wimming, canoeing, hiking, listen to music, etc. But the main thing I really wanted to share was about the swimming, I've never been much of a swimmer and I always tried to avoid swimming with a bunch of people as much as I could. And the reason being was my hearing. I was to embarresed and almost scared to swim with a bunch of people. I was always worried about missing what people would be saying. I don't lip read and I don't do sign so its kind of hard and wierd to wim with a bunch of people. And plus the fact, I always felt wierd just sitting there while everyone else was having a great time chatting and playing games. But for the first time, I actually swam with a whole group of people! It was alot easier than I thought it would be! My best friend Zoe was there too, so she kind of stuck by my side to help with what people were saying and kind of guide me to where we were all going, etc. And when ever people would start talking to me while I'm in the water (which would be quite often) zoe would explain to them that I can't hear. And everything would be fine! But then at one point I sat on the dock (with my aids on) while everyone else swam and I was listening to what everyone was saying. And at one point this guy was talking to us (me and zoe) and zoe was explaing to him about my hearing...and suprisingly he was realy accepting of it! All my life I have tried to keep my hearing as much of a secret as I could becuase I was too embarresed of what people would think of me. But this weekend I was so suprised and it felt so good to be able to tell people and they don't treat me differently! Everyone was really nice and treid to help me with whatever we were doing in the water. I don't know what I was thinking on how poeple felt about my hearing! I wish I had expeirenced this earlier in my life. Becuase now I feel like I can come out of my "shell", you know? It felt sooo good to be able to wim and hang out with a bunch of friends and knowing that they all know about my hearing and they have no problem with it! Gosh, this feels great!! : ) June 28, 2006 Remapping The other day I got remapped! I've been needing it for awhile but I've been dreading it because its usually a pain to do it! But I decided that it was time and I need to add some "tweaks" to it because I wasn't really hearing as good as I usually was. : ( So anyways...I went to a new audiologist and we did all the programming we needed. First I had to say weather or not the beeping I heard was comfortable or not. Then I had to compare between two different beeps to try to "levalize" them. That part was hard because sometimes you had to compare between a low pitch beep and a high pitch beep...And we all know the high pitch beep would seem louder!! But I had to try to levalize them, so my hearing would be all leveled and not all over the place. (???) So after all that annoying and pain-in-the-butt beeps (no offense to those audiologists reading this)...I finally got it to where I like it!! Everything sounded really clear and it was comfortable and I was finally really really happy with what I was hearing! Then after that, we added some settings to the other programs. Rene (my audiologist) said that since you have 3 programs to switch to, you hould use them! So I thought, what the heck...I'll give it a try! I don't normally switch around to different programs because I like to just put it on in the morning and not have to worry about changing any programs...I've always been like that, even with my hearing aids! But anyways, we put the regular setting on the first program, we put a etting the turns down the background on the second program, and on the third program we put a setting that's really loud - that's apparently really good for music and trying to get everything like in a library. My Programs: P1 = 60 - normal P2 = 50 - noisy places P3 = 80 - try for music, libarys, etc. Then we put me in a sound booth and tested to see what all I was actually hearing with my new settings. And it turns out that I was actually doing really well!!! I didn't think I was going to do all that great because I've been wearing my hearing aid, but I guess it really doesn't matter! My Testing Results: 55 Quiet 94% 45/55 +10 Noise 77% 65 Quiet 100% So now, I've been wearing only my implant a lot more. I've been more comfortable with it! I mean its still weird not getting any sounds out of my left ear but that'll take time to get used to for anyone! So yeah....I'm happy!! I can finally go without my hearing aid!!! YAY! So I guess its a good thing to get remapped!! haha June 19, 2006 Troop Cruise I got back from a cruise with my Girl Scout Troop!! It was alot of fun! I did a bunch of things I've never done before! : ) To me, the highlight of the cruise was the Deck Party, Snorkling, and the Theater!!! Well first of all....one of the nights, they have a deck party and for the first time....I actually danced to "fast" music. I'm not much of a dancer to start with but since I could here it and I could alctually hear the rythem...I got to dance!! YAY! I danced till 1 in the morning (non stop) YAY ME!! Then I went snorkling...now, going in the water in public was never a big thing for me becuase I was too afraid that I wouldn't hear anyone or I'd miss something someone said. But I actually went snorkling with my troop leader, and I gotta say it was AWESOME!! I was sooo glad I went!! Then after dinner, we would all go to the theater...we had comedians for 2 of the nights and I heard everything they said!! Gosh, they were hilarious!! haha, I don't think I've ever enjoyed a show like I did there!! And on the other nights...we had musicals. And I heard everything they were saying!!! : D But yeah...those were the highlights of the cruise!! But in case if you were wondering, we went on a 5 day cruise down to the bahamas to see Grand Turk, Nassau, and Half Moon Key (my favorite island!!) May 9, 2006 Questions and Answers... I’ve had some questions about the last post on my hair and the implant, Question: Do you wear your implant on top of your hair or underneath it?? Answer: Me personally wear it underneath. When I wear my hair up I try to put it underneath but there have been times, where I would have to put it on top due to the hairstyle (ex. Pigtails or a Ponytail). But when I wear my hair down…its always underneath. I have seen people wear both ways, so I guess it really depends on your preference and your hair! Question: Do people see it more easily than a hearing aid? Answer: On me…no, if anything they notice the hearing aid more than the implant! I think a lot of people think that your implant is probably ome new technology for listening to music or one of those “blue tooth” things that you see people wearing for their cell phones. And I say this because I know that almost every time we get in an elevator omebody asks Jonathan what he’s listening to…because they see the implant and assume that its like an MP3 player or something. But then that’s when we tell them what it is and what its for and they think its pretty cool and amazing that we can hear and talk even though we are deaf!! : ) I hope that helps a little bit...and if you have any other questions - ASK ME! I love answering questions that anyone has!! : ) April 18, 2006 Wearing My Hair Up....FINALLY!!! hehe : ) Well today was the first day I wore my hair up to school since I got the implant!! I never did, becuase I was too afraid of what people would say. And plus, I wasn't sure what was going to happen for when my battery dies...beacuse when it dies, I take the implant off and change the battery. But if my hair is up...then I was afraid I was going to mess up me hair when I take it off!! : / But since the school is re-doing their air conditioning systems....its like "boiling" in the chool!!! : ) So I wore my hair up to keep me cool! YAY! I was kind of nervous and hesitent to wear it up, but I decided it was time to just let everyone see it and just accept what they say. But as it comes to my shock...nobody said anything!! : D Well except when I was in the bathroom washing my hands...this girl was staring at my head. So I'm thinking she was looking at my hearing aid. hahaha. But I didn't say anything...I just kept on going! hehe : ) But yeah...Its a big differnce between the hearing aid and the cochlear implant!! And my golly...I gotta say, the implant is ALOT nicer looking than the hearing aid and plus the fact...you can color match!!!!! hehe Hearing Aid (pic. 1) AB Cochlear Implant (pic. 2) April 14, 2006 Oh, and I almost forgot....exactly one year ago (last April) I was dreaming about getting the implant....and look where I am now!! My Surgery was April 13th and I was turned on May 17th. It has been exactly One Year and One day since I got the impant!!! Coolies! : ) WOW....its been awhile!! Sorry about that!! I guess I aught to post, huh?? Well lets see, alots been going on...but first things first, my implant is doing great! I can hear everything with it and it sounds normal! And I absolutly love having the implant...and I gotta say that the main think that I like about it is the Direct Connect! I love listening to music now because I don't have to worry about it being too loud for every one else!! hehe. Then not too long ago, I was in a photo Shoot for Advanced Bionics! That was fun! I wasn't looking forward to it in the beginning becuase I didn't know what to expect but it actually turned out to be quite interesting!! This photographer (Gill-spelling?) went camping with us over spring break to take pictures of us doing things like canoeing, talking on the cell phone, listening to music, making a fire, grilling, etc. so I hope he got some good pictures. I hope we can get coppies, that would be cool! And who knows...maybe you'll see me or my brother in an Advanced Bionics Flier. Coolies!! Oh, and another thing....I got asked to my first Prom!! YAY! I was really shocked though, becuase I thought I was never going to get asked out or that I wasn't going to hear a guy asking me out becuase of my hearing!!! And I never thought a guy would want to date a deaf girl...but it turns out that I was wrong! haha And it makes me feel good becuase of all that time of worrying, it was really all for nothing! But yeah, the Prom is next weekend and I'm kind of nervous becuase I don't know how the music will sound to me. I went to a Homecoming dance and it was kind of like a bunch of noise....but I hope I'll be able to hear a little bit of the beats and the rythem this time. But I'll make sure I post to let you know. : ) So to all you girls waiting to be asked out...it will happen!! hehe And I guess this proves that the world really doesn't care about you being deaf!! They just think its cool that you can hear them!! : ) November 28, 2005 Realizing why its a hard change from HA to CI Every now and then I like to experiment with my hearing aid and Cochlear Implant by listening with my hearing aid only for a few minutes, then I switch to my cochlear implant for a few minutes and then I switch to both. And you know sometimes I get the wierdest results. Sometimes I can hear better with just the implant and ometimes I can hear better with both. But the hearing aid never win. Its either both or just the implant. But anyways, I went to the movies the other day and I was experimenting with them to see which one makes the movie sound best. So I turned off my hearing aid and listened for a few minutes to the movie. And that was the wierdest feeling! It sounds like I don't have sound on the other side. Like all the sound comes in on one side. And that makes me very uncomfortable!! I had to keep looking over to see if someone was talking to me. Its really freaky not having sound come in on the other ide. I guess its more of a security thing. So it makes you think if Bilateral is really a good thing or not and if it really makes a difference. But only someone brave enough would get one. I don't think I would ever want to get another implant....Don't get me wrong, because I love my implant but I think I'm too attached to my hearing aid to let it go. You know? And then you know another great thing about having a hearing aid in one ear is when the battery dies, which is always in the middle of my last class, I can still hear a little bit of what the teacher is saying while I'm changing the battery on my implant. So the hearing aid is like my backup. And since I'm on this topic.....I have never had someone ask me what that thing was on my ear! People have always said something about my hearing aid but not my implant. I thought people would be asking what that was because its bigger and filled with colors. haha. But that's almost a relief. Because I like it when people think of me as a normal person...And not a disability. But anyways, I thought I'd share that with you. November 19, 2005 Progress Hey! Yesterday I had a mapping session. That went ok. We tried to change the program but I didn't like it at all. It sounded too high pitch and mechanical. So instead, we decided to just keep the other program, the one that I walked in with. But since I was wearing it at about 8 o'clock, we moved it to the 12 o'clock spot. So now I've been wearing just my implant as much as I can. Yesterday I watched a whole movie with just my implant....That may not sound like a lot but for me it is. And whats shocking is that I actually got everything they said! But you know, its really weird wearing just an implant because its like you don't get any sound from the other side. All the sound comes in my right side, so I keep feeling like I forgot to turn on my hearing aid on my left side. And the urge to turn it on is so frustrating! But it really helps to just put the hearing aid in my pocket. So that way, I can't just reach up to turn it on quickly. But anyways, another thing that we did at my appointment was that we changed the extra magnet to a "half strength" which helps hold my implant on better. Before I had to hold my magnet on with another magnet on the outside. Which got really annoying because it magnetized to EVERYTHING!! I tried to put the magnet on the inside but after 20 or 30 minutes of wearing it, I would get a really bad headache. But now after getting this new magnet, I haven't had a headache and it holds my implant on ALOT better! So I'm really excited about not having to have the outside magnet on. YAY!! Well I guess this is it for now. November 10, 2005 Back into Therapy... Hey everyone! Well I don't have much to say at this point. But I had a therapy ession not to long ago....and its about time too! My last therapy ession was before school started (beginning of August). Once school tarted I just got to busy and had no time to do it. But I finally put my foot down and got back into therapy. So last week I had a therapy session and it went great! I think my therapist and my mom was amazed and shocked at how well I was doing with just the implant. And I was too! I was soo nervous about therapy that I was actually dreading it. I haven't been going just with my implant so I wasn't sure how I was going to do. But I actually did well! Since I'm in school and I have homework and club meetings, we decided to have therapy about once a month or every couple of weeks. So at each ession, she would give me alot of homework to do. And whenever we had time, my mom and I would do a little bit. So I'm really excited about how things are going with me and the implant. I've been listening to my music too, so hopefully my goal will be reached before Christmas......I'm hoping!!! (keep your fingers crossed!) Well I guess this is it for now, I just wanted to let you know what I've been doing lately. Later! October 14, 2005 Promise to myself Well, I made a promise to myself and I plan on keeping it! You want to know what the promise is?!?! Well I promise that I will work with my implant by praticing on listening to music, and hearing people without my hearing aid. And if I'm successful at doing this....I'm going to buy myself an ipod! Yeah, I know it may sound weird but I really want to do it, beacuse if I get really good at listening to music with just my implant, I can use the "wireless" headphone set for my implant so I'll look like everyone else. I won't have to deal with those big and bulky headphones. Cool huh?!?! Well I'll keep you posted on how I'm doing. Until then.... Newer Posts Older Posts Home Subscribe to: Posts (Atom) Samantha and her brother, Jonathan About Me My Photo Samantha Brilling Atlanta, Georgia, United States I was born profoundly deaf but wasn’t diagnosed until the age of two, which is when I immediately started wearing two hearing aids and going through Auditory Verbal Therapy. My hearing and discrimination got worse in 2005, which is when I got my Advanced Bionics Cochlear Implant. Now I wear the CI on my right ear and a hearing aid on my left. I'm a student at North Georgia College and State University majoring in Marketing and Graphic Design. View my complete profile I am a BEA Mentor because: "I enjoy mentoring people who are going through the same situations that I went through in deciding to get the implant, going through the urgery, and learning how to hear all over again or even for the first time. I got my CI at the end of my freshman year in High School so I can remember what it was like before I got the implant and how my life has changed ever since. I would like to share my experiences with other people from a teenager's perspective and to share the stories about my younger brother Jonathan and my Grandpa Sam, both of whom have the CI as well. My brother was implanted at age 5 and my grandpa was implanted at age 85." -Click Picture to learn more!- With my Cochlear Implant, I can: "Be a normal teenager/young adult and enjoy my college experience with my regular hearing peers. Now that I'm away at college, I can call my family and tell them all about my day and about the things going on in my life." My Favorite Sounds: "I love hearing my family talking, laughing and having a great time with me. The horn/beeps from my new car when I lock it. Music from the direct connect cord to my ipod when I go jogging, laying on the beach, etc. Music in the background at a restaurant or a coffee shop." Blog Archive Other Resources: Adult Bloggers: Young Adult/Teen Bloggers: Pediatric Bloggers: Other ways to find me: Samantha Brilling's Facebook profile Twitter Email: CreativeSam1@aol.com AIM: CreativeSam1 Skype: Bluelime0501 Subscribe To SamsHearingLife [arrow_dropdown.gif] Posts [subscribe-netvibes.png] [subscribe-yahoo.png] [icon_feed12.png] Atom [arrow_dropdown.gif] All Comments